Inherited Cancers Australia is the first and only national charity dedicated to supporting families at risk of inherited cancers.
We empower families through support, education and advocacy, because no one should be disadvantaged by their genes. 🧬
Our free Inherited Cancer Support Service offers expert guidance to help you understand how to manage your hereditary cancer risk.
Let Gabby, a certified genetic counsellor and our expert-in-residence help.
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ICA Support Services
Inherited Cancer Support Service
Peer Support Program
National Online Support Group
Chest Check Reminder
Resource Centre
Medically Induced Menopause
Family Conversations
Genetic Testing
Know Your Risk
Know Your Options
Know Your Normal
Downloadable Resources
Research & Trials
Get Involved
Donate
Collaborate
Share Your Story
Contact Us
Life Insurance Reform: Info & Support
âžœ Read Dr Jane Tiller’s article on The Conversation
➜ Read our Life Insurance Reform FAQs
➜ Connect with ICA Support Services
Li-Fraumeni Syndrome Awareness Day: Info & Support
Breast Reconstruction Real Experience Show & Tell Event
A first of its kind educational event bringing together surgical expertise and real-life surgical outcomes to support informed decisions about mastectomy.
This event is free to attend. Because of the intimate format, spots are limited and registration is required.
Triple Negative Breast Cancer Day: Stories & Support
➜ Beyond the Diagnosis: Our TNBC Documentary Series
➜ Know Your Risk
➜ Know Your Options: Genetic Testing, Risk Management
➜ Connect with ICA Support Services
Lived Experiences
Our inherited cancers community is made up of powerful voices who bravely and compassionately share their lived experiences with inherited cancer. Theses stories and insights shared here light the way for others.
Scanxiety Support Toolkit
A practical pack of strategies, from quick calming tips to community insights, to help you through the stress of scans and follow-up tests.
A message from Sarah, our CEO
In case you've missed it from our newsletter, Sarah shared a message to our community and supporters reflecting on 2025 with gratitude for everyone who carried this work.
ICA Peer Support Program
Our Peer Support Program connects you with trained mentors with lived experiences, who offer a steady hand during difficult times, provide guidance, resources, and lived insights to help navigate inherited cancer and its risks.
Invading Thoughts: ICA Psychosocial Support Initiative
Invading thoughts, the "what-ifs" about cancer or recurrence can feel overwhelming when carried alone.
In this Resource Hub, you’ll find support, ideas and voices from people who understand, along with trusted guidance and safe spaces to turn to when the thoughts feel too much.
Not sure where to start? Use our Support Pathways Tool to find what kind of support feels most helpful today.
APRISE Study
The Australian Pancreatic high-RIsk ScrEening (APRISE) Program is a national research study led by the Jreissati Pancreatic Centre at Epworth in partnership with Pankind: Pancreatic Cancer Australia.
➜ Watch the full Expert Q&A with Prof Andrew Metz
➜ Learn more about APRISE
➜ Check your family risk with Pankind's online tool
Think. Talk. Test.
Four patient support organisations. One global call to action on genetic testing: THINK. TALK. TEST. 🧬
Explore our resources:
➜ Expert Q&A with Dr Sanjeev Kumar
➜ Understanding Genetic Testing
➜ Genetic Testing Pathway Kit
➜ Mapping Your Family Health History
➜ Understanding Tumour Testing
➜ Conversation Guide
➜ Resource Centre
Translated Resources
Know your risk in your language. Explore our new translated resources in Arabic, Chinese & Vietnamese!
Know Your Options
Know Your Options so you can make informed decisions to manage your inherited cancer risk: learn more about options like screenings, risk-reducing surgeries, and medications
Know Your Risk
Know Your Risk: explore your family history and consider a genetic assessment if cancer runs in your family
Know Your Normal
Prevention is key, we're here to help you Know Your Normal and stay on top of your breast health. Access our resources on:
➜ How to do a self-breast check
➜ What symptoms to look for
➜ Video guide
➜ Self-Breast Check Reminder
What Robyn’s Topless Run Says About Gaps in Inherited Cancer Funding
"This cause is deeply personal to Robyn, to me as someone living with the BRCA1 gene variant and a history of Triple Negative Breast Cancer, and to every person in our ICA community carrying the weight of inherited cancer risk."
Read our CEO, Sarah's message on Linkedin.
The run has ended. The fight for funding hasn’t.
We may be flat out of funding, but we’re not stopping. We’re working hard to keep ICA’s support free and accessible for more families like Robyn’s.
Support can't stop.
Keep ICA running.
Why Robyn is running the City2Surf topless
Read Robyn’s lived experience and the powerful motivations behind her run in this feature from The Sydney Morning Herald.
ICA x HGSA Position Paper
Awareness must be matched with action.
On ICAD 2025, we have launched a joint Position Paper with the Human Genetics Society of Australasia (HGSA).
Help us amplify our collective voices, share this Position Statement on your platforms and with your local MP.
Breaking the cycle: Insights from the Inherited Cancers Australia community
Read and share our inherited cancer survey report
Resources for Family Conversations
Our new resources offer practical tips, conversation templates and thoughtful guidance to help you feel more prepared for conversations with your family about inherited cancer risk.
Medically Induced Menopause Resources
In partnership with Jean Hailes for Women’s Health, new and tailored resources for medically induced menopause are here to give you the clarity, guidance and support you deserve.
"The Breast Decision" on Compass by ABC Australia
Watch the latest episode of Compass, which follows Lauren’s decision to go flat after her mastectomy:
When Lauren is diagnosed with breast cancer, she faces radical surgery and the loss of both breasts. But despite cultural pressures to undergo reconstruction, she makes the bold decision to stay flat.
Lynch Syndrome
➜ Know Your Options: eviQ recommendations
➜ Resources Centre: Downloadable resources including "Questions to ask your genetic counsellor or surgeons"
➜ Be Supported: Be part of our community, join our Peer Support Program
ICA Medical Advisory Committee
Ensuring expert guidance at every step – our Medical Advisory Committee makes sure our work is evidence-based, credible and impactful. Read more about each expert here.
EROC Biobank Study
Access the contact form or download the project flyer to learn more about how this study can shape future ovarian cancer research.
Ovarian Cancer Awareness Month: Resources
➜ Participate in Ovarian Cancer Research
➜ Break the Silence:
Read our community's lived experiences
➜ Stay Informed & Supported:
- Resource Centre
- Join our online support group
- Sign up for our Peer Support Program
TNBC Project: One Year Update
Read the full update on Keely, Rhiannon, and Susan - three remarkable women featured in our 3-part docuseries, Beyond the Diagnosis: Confronting Triple-Negative Breast Cancer.
Official Name Change Announcement
Learn more about how this change will help more Australians navigating inherited cancer and its risks